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CARPE DIEM!

Sonia, smiling.

Hello, my name is Sonia Fernandez. For 25 years, my life is tied to the word PTI , so you could say that we are a married couple celebrating their silver wedding anniversary, recalling its good and bad times, but always with a big smile to celebrate a year union over ...

I do not remember the beginning, not the symptoms, as were my parents who, at the age of 5 years, noted that their first child had bruises and patches of very difficult explanation.

The first diagnosis was a hypersensitivity of the skin, which subsequently became a picture of meningitis, providing timely treatment, and after several misdiagnoses and a spinal marrow, in order to exclude a leukemia , my family first met the palaba idiopathic thrombocytopenic purpura (ITP), understanding what they meant for her daughter to live with 10,000 platelets.

fate, chance, or simply l by lot, took our way to a hematologist (out of respect, not name), I "adopted" and taught me from a very young girl who was not sick, it was just someone "special." remember every word of it, the harsh treatments, the operation that removed my spleen with 9 years old ...., but what I remember most is the support of those around me, your words of encouragement, your baby, sleepless nights ....

I will not deny that there were times I did not understand why, especially because I felt guilty for each of the tears that my loved ones had to be shed, but time, as they say, heals all, and today, although my scars always take longer to heal, in my head I have only good memories of those experiences ...

I have 29 years, an average of 50,000 platelets and a lifetime of dreams and projects. Work for four years as technical guidance and employment, career and finished my two years living with my partner, who have always support and respect those little breaks that once I have to do to get stronger, but mostly, I have lucky to be writing these lines, I hope, optimism sound like, because those who know me, always emphasize that quality in me.

My premise is "Carpe Diem" and I hope that my words that occur who read, to enjoy the moment, the fate of being "special" because it makes us see life from another perspective . I encourage you all and a hug from Galicia!

scientific research focused on hematologic malignancies is essential. What is even more so when it comes to rare diseases such as Sonia tells us. The primary mission of the José Carreras Foundation is to get leukemia and other malignant blood diseases are curable. To do this, there is only one answer: more research and better!

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"I'M NOT IN THE 9TH WEEK BUT MISSING ME 3"

Rosario has lymphocytic lymphoma, a type of non-Hodgkin lymphoma clinically and molecularly similar to chronic lymphocytic leukemia (CLL). The difference is that lymphoblastic lymphoma is mainly found in the lymph nodes while the CLL tends to be localized in the bone marrow and in the circulating blood.

The first symptom was anemia. Hemolytic anemia was diagnosed , a condition in which there is an insufficient number of red blood cells in the blood due to the premature destruction. Although the case began in Almeria, soon she was referred to Hospital Germans Trias i Pujol in Badalona (Barcelona). CAMPATH is currently treated with a monoclonal antibody generation. His treatment is going well despite having to overcome a serious cytomegalovirus infection.

Rosario, along with his niece, who accompanies her on every visit.

Dr. Navarro, the doctor explains that Rosario is in the 9 th week of treatment. She corrects him: "I'm not in Week 9 but I only need 3. When finished, I will go to people if I let Dr. Navarro. He commands. "

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an unforgettable day for Matthew, FUTURE PILOT AIRPLANE. POSITION

Mateo and Raul did not know until yesterday but they have many things in common.

Matthew is 6 years and 2 will diagnosed with leukemia. Raul should have "treintaylargos" and socio the Josep Carreras Foundation and bone marrow donor.

The first is from A Coruña and the other lives in Barcelona but both are passionate about one thing: fly.

Raul and Matthew

few months ago, Raul read an interview with Matt in the latest issue of our Foundation (Summer 2010 Bulletin ) which explained that the small " when he grows to become a doctor and airline pilot." addition to being an air traffic controller, Raul usually fly at the Aeroclub de Sabadell. For this reason, he decided to invite Matthew to take a ride on airplane.

advantage that Matthew and his mother, Mary, came to Barcelona for its monthly review, organized the event with a more than successful that we share with you.

15h

We look at the Hospital de Sant Pau to Matthew and Mary. The child is happy because he poses a unique evening. " addition, this may not have hurt me because sometimes poking me open their veins," he says, pleased. The truth is that he speaks like an adult. In commenting on his mother tells us he has matured a lot and force. " Imagine that one day his father tells the joke 'Matthew, you can not be Barca, Deportivo have to be' and, as Andres Iniesta went to visit Matthew when he was in the ICU one Christmas, the child answered his father, 'he did me a favor viniéndome encouraged me to see and now I can not fail . "

is normal matured quickly, has a lifetime of hospital to hospital. At 2 years was diagnosed with acute myeloid leukemia . The disease was very advanced and had more than 90% of blasts in the blood. After a few months receiving chemotherapy in the hospital from A Coruña, he moved to Barcelona. Matthew had to undergo an autologous bone you been brought back to a more or less normal. Unfortunately, only lasted a year.

" That year was the only one who has gone to school , "explains Mary his mother. " Now, a few days ago just starting the new course and is delighted ." After recovering for the first time, fell and there was no choice but to make a bone marrow transplant unrelated. As his older sister, Antia, was not compatible with it, the team of Dr. Badell, Hospital de Sant Pau, requested an unrelated donor search our Foundation. It took a bit to find it but eventually the registry Marrow Donor (REDMO) located a unit of umbilical cord blood for Mateo American. In December will be 2 years after transplantation.

" is a very strong child," says Mary, " although unwell, though he was in the ICU, he got up to play, making jokes, etc ." "Remember of the potion, Mom? "Matthew interrupted laughing. And he explains: " It was in the ICU and made a potion with toothpaste, shampoo and other things and I did drink to Carlos, the nurse ." "And did it work ?" He asked. Mary bends and breaks, " imagine the look on his face Mateo when, after a while, becomes a nurse in a blonde wig with braids asking what has made the potion because it feels a little strange ."

At 16h we're in the cafeteria of the Aeroclub de Sabadell waiting for Raul. This comes with his hands full: a sticker album aircraft and an aircraft like the Red Baron for Matthew. The evening is presented very well. Raul Matthew delivers a bottle of liquor typical of Galicia. "He did my grandfather," he says proudly. We boarded the plane and get the keys and accredit and give him a hat Mateo and a polo aviator. " For he is like a movie ," says Maria, satisfied.

Mateo, happy with their gifts.

Picking up the keys to the plane.

And finally we went to the runway. Raul teaches Matthew how to put the plane ready, see if there is gasoline ... And, ready for trip! The little one is happy with his "new career" and Raul to explain even the slightest detail. Form an "Odd Couple" but dovetail very well. Lluís accompanied by a flight instructor, Matthew and Maria begin a journey 'very nearly' piloted by Matthew. " I pushed the buttons, I have seen the houses from the sky ..." he explains after landing.

then we will see the control tower. Gabi and Javier, accompanied by Raúl, of course, explain to Matthew to serve all devices. We are fortunate that at that very moment, requested two helicopters landing French military. Matthew A-LU-CI-NA! The things that you can count on Hugo and Jaime, your best friends from school, when Galicia again tomorrow.

It was a spectacular day for Matthew and others also we had a very good. " What if pilots are going to be ," I tell Mary. " Best - tells us - because once occurred to him that he wanted to be a bullfighter and Dr. Badell almost gives you something. He said, "with what has cost us heal and you were unwell, now you can do bullfighter us we'll stick a fright as you pass something ..." .

Mateo and Raul, with the commissioning of the aircraft.

Raul and Maria greet before takeoff.

From Josep Carreras Foundation wholeheartedly want to thank Raul their kindness and affection with which it has organized everything. At all times has been pending in any detail so that she'll have fun Mateo and appreciated. Thanks for being a member of our Foundation and, especially, being a sensitive person to the fight against leukemia. Will be a day unforgettable for everyone.

Thanks also to the Aeroclub de Sabadell you have given us all the way 100% free.

From right to left, Raul, a member of the José Carreras Foundation, Matthew, leukemia patient, Mary, the mother of Matthew, and Alexandra, Communications of the Josep Carreras Foundation .

Become a partner in the fight against leukemia and will help us to continue to invest resources for children like Matthew to recover.

Learn about donating bone marrow and umbilical cord blood. can save lives!

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"BUG BALL"

" hate the position of" bug ball "of the punctures. Not that it hurts, is giving me creeps "and Mario responds with grace, the news you just gave Dr. Tony Smith: This afternoon, after receiving chemo, it's up lumbar puncture.

Are 10.30 am and we are in the query 8 of the sixth floor of the ICO (Institut Català d'Oncologia), Hospital Germans Trias i Pujol in Badalona. Waterfront Dr. Navarro, Mario, 63, and a friend. Mario comes to getting the second round of chemotherapy to treat lymphoma suffering. Following consultation, we have seven boring hours ahead. "The chemo Mario must take a medication to be put very slowly," explains Dr. Navarro.

few months ago, Mary was a lump in the neck that, little by little, grew larger. " the end was 8 cm and was bleeding all day mouth," he explains. She was diagnosed with B cell lymphoma and had surgery on the neck node. Now is better but all the track node a bit afraid. Lucky is very friendly and fun and take things with humor. "I have a hunger die me," he says, " now I can only eat liquid neck theme, but when I can, I'll eat everything. After the chemo I have to make arrangements ! ".

also If Mario is a special case because he is HIV positive. For this reason, in addition to chemotherapy, Dr. Navarro poked around growth factors to ensure that sufficient defenses in the body. Dr. Navarro is a specialist in cases of people infected with HIV lymphoma *. " Before it was different but now the case of a patient with HIV who have lymphoma is not worse than other patients. Because they are highly controlled by taking antiretroviral medication, the treatment for lymphoma is common. Just add growth factors to mobilize in case the defenses. It's more a precaution than anything else ", explains the hematologist.

Mario is a bit nervous but happy. Like your doctor and take things philosophically.

Mood Mario you still have a stretch but you're doing great! That sense of humor is essential.

* In general, immunosuppressed patients have more frequently non-Hodgkin lymphoma (NHL). Its appearance is related to the degree of immune deficiency usually appear later in the evolution of HIV infection when the immune status is very deteriorated. For more information, click HERE .

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