"It was just after receiving the first vaccine for three months, when Victor began to show signs of something was wrong came the coughing, fever and vomiting, the doctor did what he could, he was still happy, always so happy, and hungry, always been so greedy, but did not improve.
One Sunday evening, we took him to the emergency room at Mother and Child Hospital Sant Joan de Déu in Barcelona, \u200b\u200bwhere he was born with her brothers triplets, and I left, his skin showed signs red throughout the body, the fever down, the cough was persistent, and physical decline was significant. Testing began, first diagnosis, immunocompromised, had to spend more than a month to get the final diagnosis: "Severe Combined Immunodeficiency with increased B lymphocytes." We will never forget the moment, a room with seven doctors, all very serious, we did not understand what We talked, told us that the only solution was a t rasplante bone marrow, we still do not understand that we speak, only I had a question: is the only option? Yes.
We talked about the fate of siblings in these cases, analytical, insulation, cameras, many hundreds of probabilities, chemotherapy , ..., we room alone, saying nothing, we went walking to a nearby park, sat on a bench and cried, long time in silence, we still do not understand what we were talking.
The isolated in a room, there were no cameras at the hospital, while waiting for the results of tests to determine who was supported by his brothers, or us. While continuing to deteriorate, the results were negative, there was no support, was when we discussed the Josep Carreras Foundation and bank bone marrow donors. A case of meningitis in the hospital and hopes of finding a donor alerted to doctors could not continue without being isolated. He was taken to Hospital Vall d'Hebron Barcelona. plant in isolation chambers with their condition and appearance improved, but still did not appear a suitable donor, it was then that Dr. Ortega and Dr. Olive told us about stem cells, but had not tried before was the only possibility was 1995 and then did not know the potential of umbilical cords , time was running out, they would take stem cells from the bone of the father and trasplantarÃan Victor, confident that if there was no rejection, these cells create new marrow, hopefully fingers crossed.
On 7 July, San Fermin, the chupinazo entered through the veins of Victor, and started waiting, waiting a long time, so long! While repeated rejection episodes and increased doses of immunosuppressants, a toxic megacolon attacked mercilessly and it seemed that everything was going down, but not Victor's smile went out, had love for all nurses.
could not speak, but made himself understood perfectly, the nurse Rafa danced ... "there is a shark, shark, do not stop, go go" .. If asked How far are the nurses? will put his hands on his head and escaped her naughty smile.
He decided the order of drugs was taken orally, without question and always to arm or hand what they were going to spin if the port-a-cath, VENOCATH or catheter shift did not work, a good patient only one year.
One day, the number of rejections and immunosuppressive doses began to reverse, it seemed that everything was fine, I just had to gain weight, and on the street!. was released on August 15, 1996, 10 days shy of two years, not build defenses but accepted the bone, face the world, with all the dangers of a being that has been 14 months isolated in a sterile environment was his new challenge, but his smile was our hope, blindly trusted him.
outside the hospital were refusals, diarrhea and weight loss until it rejoined in January, malnourished and dehydrated. With the weather seemed to improve, is fed by vein, but his skin could not take any catheter until a rejection of a VENOCATH filled his lungs of fluid to be supplied as food. He was saved by a nurse, during a boring night, he went to play with, why Victor's smile was still in love, found it almost faded, scarcely breathing and purple complexion. He would have died that night had it not been for the nurse. Admitted to the ICU emergency, spent a week connected to two pumps that slowly, we subtracted the fluid in the lungs, was the only time he lost his smile. returned to the plant, with a catheter well connected and has since started to climb, with great dedication by all health personnel, until he left the hospital never to return!
learned to put a nasogastric tube and feeding with a pump, until they are turned off forever. At the age of three gave us all their first cell created by him, slowly but surely, recovery was already a fact, was the first successful vaccines, started going to school, ate everything, talked, ran, fell and got up again just ... Today, aged 16, is a normal kid, without sequelae, with only a few scars from multiple port-a-cath, VENOCATH and catheters needed, and most importantly, does not remember anything!
Victor's plan is to com artistic and removed the bachelor of fine arts career, to devote to education, and lend a hand Oleguer his brother, who is currently out of the same disease, but that is another story. "
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